A Change of Heart: Tweet-Chat tonight, 8pm EDT, on patient-initiated research, advocacy & more

Thursday, October 27, 2011

Tweet-Chat tonight, 8pm EDT, on patient-initiated research, advocacy & more

My first-ever tweet-chat will be tonight at 8pm EDT. Tweeting with me will be my fellow SCAD patient, Mayo co-presenter and friend, Katherine Leon.

Stop by, and ask questions! We're going to be focusing on patient-initiated research, what it means to be an e-patient and a patient advocate, and more.

Details here.

Also, if you're not already following me on Twitter, I'm @LauraGHC.

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Why am I doing this?

In March of 2009 I had a heart attack. It was as much a surprise to me as it was to the doctors; I don't have any risk factors--no high blood pressure, no diabetes, no clogged arteries, no family history; plus I'm a young (in cardiac terms) female who exercises. Definitely NOT the usual suspect for a heart attack.

But tell that to my body--I had one anyway. Turns out that I experienced a rare thing called a Spontaneous Coronary Artery Dissection. Don't google the term unless you're prepared to be depressed by mortality rates and statistics, and the fact that doctors really have no clue about what causes some people to have them.

The bright side is that my toast landed butter side up, and I'm still here. In 2009 I put together a one-shot fanzine called A Change of Heart; you can get a PDF copy of it from efanzines.com here. This blog is an extension of that fanzine and an effort to reach more people, both in and out of of the fannish science fiction community.

If you want to read my story from the beginning, I suggest starting with this link to my wonderful husband Paul's journal:

Laura Had A Heart Attack Monday Morning.

He kept up a pretty good running commentary of what was happening while I was still in the hospital, and it starts there. The "Next" and "Previous" links move to later and earlier entries, detailing our experiences.

In October, 2010, I competed in and finished the Chapel Hill Ramblin' Rose Triathlon. These are pictures Paul took of me riding my bike and running (he couldn't get into the pool).